Kaitlyn has now started to walk by herself! We are very proud of her- she takes great delight in

her new found independence and will regularly give her self a round of applause for her efforts! We had a check up at BCH recently , the plan is to stop one of her medications next month and thereafter reduce another which will leave her with only two lots to take. The planned catheter has been put back again as she is doing really well at present. They may be able to get away with a CT scan which will avoid a general anesthetic so we are keeping our our fingers crossed for that. We have booked a holiday to Spain next month and we are all looking forward to enjoying some sunshine for a change!