Clever Girl!!!

Kaitlyn was taking about two thirds from her bottle and the rest down the tube so on 6th October we were able to take the tube out and give her a chance to cope without it. She gradually built up her daily amount - unfortunately got a bad dose of acid reflux which didnt help but after her meds were increased she settled down. since then she has not looked back and is doing really well with out that wretched tube! Although on some days it takes 9 bottles over the 24 hour period so sleepless nights again!

We had a meeting with her heart surgeon Mr Barron on Friday and things look good for her next operation , even though she has two veins to connect rather than one and she has a leaky valve!!

The other day Kaitlyn had her first proper laugh - she found Joshua's karate kicks very entertaining ""