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Kaitlyn Has Had Her Cardiac Catheter!

We went into BCh on6th September 2006 slightly nervous! Kaitlyn had her catheter on 7th September - it was hard taking her down to theatre again and being with her while she was put to sleep - she was all smiles to begin with then started to cry- although we were told it would be about 2 hours we ended up waiting 4 hours again we were so worried something had gone wrong but thankfully she was ok - we were told that the catheter had gone well , the aortic arch had been blocked so they had cleared it by a balloon technique and her veins all looked good - she does had a leaky value which they will keep an eye on. Unfortunately they couldn 't find a pulse in Kaitlyn's leg so they had to start her on Heprin over night and then on some very strong clot busting drugs the next day - thankfully the leg returned to normal but it really made Kaitlyn ill again and she was back on HDU - since we have been home she has gradually improved although her feeding is not as good as before and it looks like this wreched NG tube is staying put a while longer!! Now we are waiting for news of when her second stage operation will be,,